Home Catalog Services News About ContactLOGIN



Gerry Nesbitt - Director

Gerry Nesbitt is an informatics innovator specializing in academic clinical research IT. He was previously the Director of Informatics at the University of California, San Francisco. He was responsible for IT on the Epilepsy Phenome/Genome Project, a $15M/5 year NIH funded project and the largest ever epidemiological and genomic study of epilepsy and seizures. He was also the Director of Informatics of the EPI4K study and the Human Epilepsy Project. Prior to this, Gerry was responsible for IT and bioinformatics with the UCSF/Immune Tolerance Network , a NIH funded project that conducts clinical research for autoimmune diseases.

In 2012, Gerry designed and developed CLIRINX, a state-of-the-art web-based data collection system for epilepsy and rare disease clinical research. The CLIRINX system is being used across multiple research projects globally, including Lurie Children's Hospital [the Early Onset Epilepsy Consortium (EOEC), National Infantile Spasms Consortium (NISC), Precision Medicine Initiative and a study of genetic variants associated with heart rhythm (channelopathies) and myocardial function], the Baylor College of Medicine [RIKEE Study and ERGENT Study], Dravet Foundation [Consensus Project], Colorado Children's Hospital [I-SITT Study], the Rett Syndrome Research Trust [OMBD Study], the FamilieSCN2A Clinical Trial Readiness Study, Univ. of Melbourne (Epilepsy Genetics Study and Patient Hub), The Inchstone Project and the Lurie/PCORI LGS Project.

In 2020, Gerry designed/launched the CRID Clinical Research ID, a system used for identifying the same patient across research protocols in rare disease clinical research. The CRID paper was published in 2022.

Recent News

Jul 1, 2024 The RDDR is now live. https://theRDDR.org

Apr 24, 2024 CLIRINX launches RDDR